A Special Wish - Chicago

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Caliph

20-Year-old Caliph (K) was born special. You see he was born a twin. Caliph and his brother Calid brought tons of joy to the lives of their families. But K was much more special than his parents could ever imagine. K was born with a PTEN gene associated with increased risk of certain Cancer, benign tumors growths (which is just one of his battles) & neurodevelopmental conditions. 

K was diagnosed with Cowden's Syndrome which affects each carrier differently. K suffers from Vascular and Arteriovenous (AVM) Malformations. Which also affected him with Congenital limb overgrowth discrepancy. At the sweet age of 2yrs old K developed a small lump on the top of his left foot.  

As we come into the new year K's surgery count will exceed 30 procedures. He suffers 365 days 24/7. It's a brutal to see, we can't even fathom how he deals with it. But he's not dealing with it alone. Team Kellogg is what it takes. No one in our home has days off, with his brother being one of his biggest supporters.  We often have to be mindful as to how his life has also been effect by his twin brother's condition. K spends the majority of his days in an immobilized position. K's unable to leave home much due to the inability to walk. If he's able to go out he has to use a motorized scooter or wheelchair.